Glossary
  • 1. Introduction
  • 2. Glossary
  • 3. References
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3. References

[1]

European Commission, “Affiliated Entities – Explanations for IMCAP 2024,” 2024. Accessed: Mar. 13, 2025. [Online]. Available: https://agriculture.ec.europa.eu/system/files/2023-10/affiliated-entities-explanations-imcap-2024_en.pdf

[2]

European Commission, “Affiliated Entities – Explanations for IMCAP 2024,” 2024. Accessed: Mar. 13, 2025. [Online]. Available: https://agriculture.ec.europa.eu/system/files/2023-10/affiliated-entities-explanations-imcap-2024_en.pdf

[3]

REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL LAYING DOWN HARMONISED RULES ON ARTIFICIAL INTELLIGENCE (ARTIFICIAL INTELLIGENCE ACT) AND AMENDING CERTAIN UNION LEGISLATIVE ACTS [Online]. Available: https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A52021PC0206

[4]

“Art. 4(4) GDPR, Regulation (EU) 2016/679 of the European Parliament and of the Council,” 27 April 2016. [Online]. Available: https://eur-lex.europa.eu/legal- content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=es.

[5]

E. C. High-Level Expert Group on Artificial Intelligence (AI HLEG), “The Assessment List for Trustworthy Artificial Intelligence (ALTAI) for self-assessment,” 2020. doi: 10.2759/002360.

[6]

“EMA, External guidance on the implementation of the European Medicines Agency policy on the publication of clinical data for medicinal products for human use, October 2018.,” [Online]. Available: https://www.ema.europa.eu/en/documents/regulatory-procedural-guid.

[7]

REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL LAYING DOWN HARMONISED RULES ON ARTIFICIAL INTELLIGENCE (ARTIFICIAL INTELLIGENCE ACT) AND AMENDING CERTAIN UNION LEGISLATIVE ACTS [Online]. Available: https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=celex%3A52021PC0206

[8]

E. C. High-Level Expert Group on Artificial Intelligence (AI HLEG), “The Assessment List for Trustworthy Artificial Intelligence (ALTAI) for self-assessment,” 2020. doi: 10.2759/002360.

[9]

National Cyber Security Centre of The Netherlands (NCSC-NL), “Operational Framework NCSC-NL,” 2019. Accessed: Mar. 13, 2025. [Online]. Available: https://english.ncsc.nl/binaries/ncsc-en/documenten/publications/2019/juli/02/operational-framework-and-rfc2350/190321_Operational_framework.pdf

[10]

“Art. 29 DATA PROTECTION WORKING PARTY. Opinion 05/2014 on Anonymisation Techniques.” [Online]. Available: https://ec.europa.eu/justice/article-29/documentation/opinion-recommendation/files/2014/wp216_en.pdf

[11]

“Art. 4(14) GDPR, Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016.,” [Online]. Available: https://eur-lex.europa.eu/legal-content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=es.

[12]

“Proposal for a Regulation of the European Parliament and Council laying down harmonised rules on Artificial Intelligence,” [Online]. Available: https://eur-lex.europa.eu/resource.html?uri=cellar:e0649735-a372-11eb-9585- 01aa75ed71a1.0001.02/DOC_1&format=PDF.

[13]

National Cyber Security Centre of The Netherlands (NCSC-NL), “Operational Framework NCSC-NL,” 2019. Accessed: Mar. 13, 2025. [Online]. Available: https://english.ncsc.nl/binaries/ncsc-en/documenten/publications/2019/juli/02/operational-framework-and-rfc2350/190321_Operational_framework.pdf

[14]

“What is a CSO (chief security officer)?,” [Online]. Available: https://www.techtarget.com/whatis/definition/CSO-Chief-Security-Officer.

[15]

“Oxford University Press,” [Online]. Available: Lexico.com.

[16]

“ISO. Information technology, Cloud computing, Overview and vocabulary.,” [Online]. Available: https://www.iso.org/obp/ui/#iso:std:iso-iec:17788:ed-1:v1:en.

[17]

“Art. 4(11) GDPR, Regulation (EU) 2016/679 of the European Parliament and of the Council of 27,” [Online].

[18]

“FUTURE-AI: International consensus guideline for trustworthy and deployable artificial intelligence in healthcare. [Manuscript submitted for publication],” 2023. [Online].

[19]

“Art. 4(5) GDPR, Regulation (EU) 2016/679 of the European Parliament and of the Council,” 27 April 2016. [Online]. Available: https://eur-lex.europa.eu/legal- content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=es.

[20]

“April 2016,” [Online]. Available: https://eurlex.europa.eu/legal- content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=es .

[21]

European Commission, “PM2 Project Management Methodology,” 2019. Accessed: Mar. 13, 2025. [Online]. Available: https://www.pm2alliance.eu/wp-content/uploads/2019/05/PM%C2%B2-project-management-methodology.pdf

[22]

“Art. 4(2) GDPR, Regulation (EU) 2016/679 of the European Parliament and of the Council.,” 27 April 2016. [Online]. Available: https://eur-lex.europa.eu/legal- content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=es.

[23]

[Online]. Available: https://nnlm.gov/data/thesaurus/data.

[24]

“From the Beyond 1 Million Genomes project.,” [Online].

[25]

[Online]. Available: https://nnlm.gov/data/thesaurus/data.

[26]

Regulation (EU) 2023/2854 of the European Parliament and of the Council of 13 December 2023 on harmonised rules on fair access to and use of data and amending Regulation (EU) 2017/2394 and Directive (EU) 2020/1828 (Data Act) [Online]. Available: https://eur-lex.europa.eu/eli/reg/2023/2854

[27]

REGULATION (EU) 2022/868 OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL of 30 May 2022 on European data governance and amending Regulation (EU) 2018/1724 (Data Governance Act) [Online]. Available: https://eur-lex.europa.eu/legal-content/EN/TXT/HTML/?uri=CELEX:32022R0868

[28]

[Online]. Available: https://hal.archives-ouvertes.fr/hal-03226010.

[29]

“Par.67 GDPR, Regulation (EU) 2016/679 of the european Parliament and of the Council of 27,”

[30]

European Commission, “PM2 Project Management Methodology,” 2019. Accessed: Mar. 13, 2025. [Online]. Available: https://www.pm2alliance.eu/wp-content/uploads/2019/05/PM%C2%B2-project-management-methodology.pdf

[31]

[Online]. Available: https://edps.europa.eu/data-protection/data-protection/glossary/d_en#data_quality.

[32]

“What is Data Mapping?: A Comprehensive Guide 101,” [Online]. Available: https://hevodata.com/learn/data-mapping/.

[33]

Art. 2 (10) REGULATION (EU) 2022/868 OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL of 30 May 2022 on European data governance and amending Regulation (EU) 2018/1724 (Data Governance Act) [Online]. Available: https://eur-lex.europa.eu/legal-content/EN/TXT/HTML/?uri=CELEX:32022R0868

[34]

[Online]. Available: https://www.iso.org/obp/ui/#iso:std:iso:8000:-2:ed-4:v1:en.

[35]

O. Subasi, O. Bel, J. Manzano, and K. Barker, “The Landscape of Modern Machine Learning: A Review of Machine, Distributed and Federated Learning,” Dec. 2023, Accessed: Mar. 13, 2025. [Online]. Available: http://arxiv.org/abs/2312.03120

[36]

“Glossary: Data Sovereignty - Critical Data Studies - Purdue University.,” [Online]. Available: https://purdue.edu/critical-data-studies/collaborative-glossary/data-sovereignty.php.

[37]

“Art. 4(1) GDPR, Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016.,” [Online]. Available: https://eur-lex.europa.eu/legal-content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=es.

[38]

GUIDE TO BASIC ANONYMISATION - Personal Data Protection Commission Singapore Online. Available: https://www.pdpc.gov.sg/-/media/Files/PDPC/PDF-Files/Advisory-Guidelines/Guide-to-Basic-Anonymisation-31-March-2022.pdf

[39]

Regulation (EU) 2023/2854 of the European Parliament and of the Council of 13 December 2023 on harmonised rules on fair access to and use of data and amending Regulation (EU) 2017/2394 and Directive (EU) 2020/1828 (Data Act) [Online]. Available: https://eur-lex.europa.eu/eli/reg/2023/2854

[40]

“Policy Programme: Path to the Digital Decade - Q&A,” [Online]. Available: https://ec.europa.eu/commission/presscorner/detail/en/qanda_21_4631.

[41]

“The FAIR Guiding Principles for scientific data management and stewardship. Sci Data 3, 160018.,” 2016. [Online]. Available: https://doi.org/10.1038/sdata.2016.18.

[42]

[Online]. Available: https://upload.wikimedia.org/wikipedia/commons/b/b7/Implementing_FAIR_Data_Principles_The_Role_of_Libraries.pdf.

[43]

[Online]. Available: https://www.foldercase.com/blog-federated-data-analysis-how-to-get-started.php.

[44]

“Adapted from Brendan McMahan, Eider Moore, Daniel Ramage, Seth Hampson, Blaise Aguera y Arcas Proceedings of the 20th International Conference on Artificial Intelligence and Statistics, PMLR 54:1273-1282, 2017.,” [Online].

[45]

A. and L. & F. M. at the C. V. S. (CVS) of the R. E. A. Ivelina Tsocheva, “Ownership Control Assessment Tutorial,” 2023. Accessed: Mar. 13, 2025. [Online]. Available: https://defence-industry-space.ec.europa.eu/system/files/2024-05/EDF%20Tutorial%20-%20Ownership%20and%20control%20assessment%20%28Info%20Days%202023%29.pdf

[46]

O. Subasi, O. Bel, J. Manzano, and K. Barker, “The Landscape of Modern Machine Learning: A Review of Machine, Distributed and Federated Learning,” Dec. 2023, Accessed: Mar. 13, 2025. [Online]. Available: http://arxiv.org/abs/2312.03120

[47]

“Art. 4 (6) GDPR, Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016.,” [Online]. Available: https://eur-lex.europa.eu/legal-content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=es.

[48]

“Art. 4(13) GDPR, Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016.,” [Online]. Available: https://eur-lex.europa.eu/legal-content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=es.

[49]

“Art. 4(15) GDPR, Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016.,” [Online]. Available: https://eur-lex.europa.eu/legal-content/EN/TXT/PDF/?uri=CELEX:32016R0679&from=es.

[50]

“PHIRI glossary.,” [Online]. Available: https://www.phiri.eu/glossary.

[51]

“Marieke Verschuuren, Hans van Oers. Population Health Monitoring: Climbing the Information Pyramid.,” [Online]. Available: https://be1lib.org/book/3661052/728e4e.

[52]

WHO, “Ethics and Governance of Artificial Intelligence for Health.,” 2021. [Online]. Available: https://apps.who.int/iris/rest/bitstreams/1352854/retrieve.

[53]

“Harvesting - Metadata Basics - LibGuides at University of Texas at Austin.,” [Online]. Available: https://guides.lib.utexas.edu/metadata-basics/harvesting.

[54]

“Wikipedia, Open Data.,” [Online]. Available: https://en.wikipedia.org/wiki/Open_data.

[55]

“Wikipedia, Open Science.,” [Online]. Available: https://en.wikipedia.org/wiki/Open_science.

[56]

A. and L. & F. M. at the C. V. S. (CVS) of the R. E. A. Ivelina Tsocheva, “Ownership Control Assessment Tutorial,” 2023. Accessed: Mar. 13, 2025. [Online]. Available: https://defence-industry-space.ec.europa.eu/system/files/2024-05/EDF%20Tutorial%20-%20Ownership%20and%20control%20assessment%20%28Info%20Days%202023%29.pdf

[57]

Article 3 (1) “Regulation (EU) 2018/1725 of the European Parliament and of the Council.,” 23 October 2018. [Online]. Available: https://eur-lex.europa.eu/legal- content/EN/TXT/PDF/?uri=CELEX:32018R1725&from=EN.

[58]

“Art. 4(12) GDPR, Regulation (EU) 2016/679 of the European,” [Online].

[59]

[Online].Available: https://edps.europa.eu/press-publications/publications/techsonar/synthetic-data_en.

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